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Friday, March 22, 2013

the day after and some good numbers.

sorry for the confusion.
i ended up switching my chemo to thursday so i could see dr. liu on her only day in clinic. because my white counts were too low last week she wants me to wait 4 weeks until my next infusion to give my whites time to come up.
she also sent me home with three shots of neupogen to help that process. each shot costs about 300$ thank you university of michigan M support for continuing to pick up the bill for me. on a good note my CA125 (a blood test used to measure the amount of cancer in your body- which by the way is considered to be an inaccurate test) was 471.8 before my surgery, and 52.9 after. following my first infusion my CA125 came down to 7.1. dr. liu said it wont come down any more, that these results after one bout of chemo are absolutely amazing. even after two infusions it would still be considered miraculous. but, and i did ask her, i do have to follow up the course and get 4 more treatments.
my next chemo is on my 37th birthday. my dearest melissa has set up a really sweet chart so you can come visit me if you like. you can find it at
http://doodle.com/s3fnsn7vazxzxaaw
they switched up my pre-chemo anti-nausea drugs this time. not much upset to speak of. strangly im having an unsettling feeling about it. melissa had a good analogy. its like getting an epidural for chemo. im going through it and part of me feels like i should be experiencing it more. im covered in bandaids. never been a fan of them.

Thursday, March 21, 2013

chemo birthday fun 4/18/13.

Hi! Melissa again. I just created a scheduling Doodle for you to sign up and visit Caryn during her birthday chemo. Please go to this link:
http://doodle.com/s3fnsn7vazxzxaaw
and fill out the time you can stop by for 15 minutes and click Save when you're done. I'll send out a schedule to everyone or update here once it is filled up. Two more things to be aware of - One, IF Caryn shows up, gets her blood test and can't have chemo that day, then I will update this page so if you are signed up to visit, please check this page before you come to the hospital. Two, if you are feeling sick at all, whatsoever, please send your love in an email or through this carepage but do not come for a visit. Thanks!
Melissa

update 3/21/13

This is Melissa, hacking into Caryn's account. Happy spring everyone (as snow flurries outside)! I am here with sweet Caryn at chemo round 2. After eating some delicious lunch from Chela's and then Caryn's favorite part of chemo, the massive dosage of Benadryl that makes her feel sky high, Caryn is snoozing right now and she asked me to write this update. She was super pumped up for chemo today and her neutrophil and white blood count was cooperating so it was a go! A nice volunteer was already by and had a cart of goodies so Caryn now has a new green knit hat and also what she is calling her doo-rag. It'll be nice this summer cause it's like a think red and white gingham cotton. She also found out some good news from Dr. Liu- her CA-125 count is down more than expected (she'll have to tell you the numbers herself). That is very exciting. The not so fun news is that her next chemo is scheduled on her birthday, April 18th. I personally think we should have a party on Wednesday the 17th with some delicious food, good friends and family. But Caryn also wants a lot of friends to stop by and bring her goodies and treats during chemo on the 18th. There can only be 1 person back with her at a time so should we have a schedule where different friends and family can sign up so not everyone overlaps, or just let it happen organically? I'm gonna go but I'll post some pictures. The first is a few minutes after her Benadryl was administered and the second is of Caryn blessing the chemo before infusion. Hope you are all having a wonderful day!
--Melissa

Thursday, March 14, 2013

never forget to advocate with grace.


i got sent home from my chemo appointment yesterday.
no, it was not because of poor behavior,
i was a perfect lady.
my absolute neutrophil count was low,
an element of my complete white blood cell count.
this was disappointing on many levels.
once chemotherapy is begun, its common to want to get it done with.
more though the emotional preparation it took to get there.
asking my parents to take hazel, packing of multiple bags full with snacks, magic charms, i pod, clothing that gives easy access to port by way of wide neckline, ball of sunshine, sister in tow, on and on.
we quelled our sorrows by going to the community cancer center
for a free yoga class. actually quite nice. pretty amazing place.
and then to michaels craft store to hoard earring findings and beads.
i got home so crabby matt and i got in bed for a nap and after asking my parents to keep hazel for the night (a super treat for her) we slept until 6:30pm.
the advocacy?
get this.
last week when i did not get chemo because i was sick, i did get a blood draw and see dr liu.
this week i was instructed by her
and received a reminder print-out that i should arrive at 8am for my blood draw and 9am for my infusion.
when i arrived at the lab they did not have a req for my draw.
what they did have was a piece of paper that read
'dr liu says to use the lab report from last week"
naturally i did not feel comfortable with this.
i know my levels can change quickly and that there was no way i could count on them being the same as last week.
it took me a little while to convince the staff that even though their piece of paper said i did not need a drew did in fact need one.
so they paged a doctor,
and i called up to the oncology department.
eventually i got my req.
this took about an hour.
the kicker?
last week my NEUT was 3.2, healthy range is 1.5-7.2
this week it was 1.3
the receptionist told me it was too low to do chemo.
in fact it was quite dangerous.
one could end up in the hospital (where i already was but you understand)
for receiving chemo on top of such low counts.
you make the connection.
p.s. will someone else write an update for me?
caryn.

Friday, March 8, 2013

grrrrrrrrrrr.

infusion #2
postponed
until
next
thursday
due to
illness
caught
from lovely
blameless
daughter.
painful sore throat and ears + hot flashes = complete misery.

Friday, March 1, 2013

up late with side effects.

i cant sleep so well since my surgery, or my first chemo, im not sure which.
im laying my bets on the surgically induced menopause, but matt is not convinced. either way it sucks. ive always been such a good sleeper, or up late at night i had the energy to get things done and now i have only a strange anxiety/caged feeling i cant quite explain.
im gonna lay on some melatonin tonight you bet.
my next infusion is in six days. my hair started to come loose almost two weeks to the date after session one. i had an obsessive trichotillomania moment in the car and when i got home matt told me the top of my head looked like an old lady and i freaked and had him go get the buzzer.
hazel helped. i really wanted her to be there for it.
she keeps saying now, 'mamma hair gonna come back.'
speaking of the so brave little one, she threw up yesterday three times starting around four and so we had bubi and saba come pick her up as i am supposed to closely guard my immune system. word is she threw up four more times today and is completely lethargic and napish. i bring this up because every time she vomits she does it ever so calmly with no tears or shock. sometimes telling us just before. . . and ALWAYS after saying, 'im okay im okay.' it hurts to not be with her right now. im missing her sicky cuddle time so precious to a mothers arms.
its only been a month and a half since i was diagnosed. i see hanging in the back of my head all the things i have not yet mourned because the time is just not there. there is no space for these tears now as positivity has to push them out. im going through menopause. that alone is devastating.
i cannot have another baby, dont get me started. i have no uterus or ovaries and i am a freaking birth doula! i will not bleed anymore (i am the kind of animal who praises this time). really i have spent the past two years in grief and loss. take me here and i will remind you that i had to stop breast feeding hazel when she was ten months old. im absolutely sure this took my already frightful postpartum depression to a deeper dark dark hole.
for now though i feel pretty good. i think i like my shaved head. people keep telling me i look so much better than the last time they saw me.
i still owe all my gratitude to dr lu (the accupuncturist one)
he said, 'you are really healthy! you just have cancer.'
little hazelnut rest deep and soft and come home soon.

Tuesday, February 19, 2013

tuesday

this morning in bed i told hazel
the medicine the hospital will put in my port
(we have been talking)
will make mama's hair go away.
i told her we were going to shave mama's head soon.
did she want to help?
yeeeeeeeahhhhh!
i dont her i would look different.
she said, goddess bless her spirit. . .
papa different.
aunt b different.
bubi different. . .
how in the?

Saturday, February 16, 2013

two days post.

my sister and my aunt beth took hazel in her white fluff tu tu to kroger because all i feel like eating is annie's macaroni in a box. i forgot how much nausea sucks. its real hard gettin the calories in over here.
matt just had to carry me back from a walk in the field because i was so light headed. yuck. i feel so sad matt has to go through this again. the house always a mess of stuff, things coming in, food to freeze, doing EVERYTHING, no space to himself because of all the people who come. which i can totally understand but my need for these people is more important than his angst. i love you matty and you are being wonderful and im so sorry you have to take on the weight of things again when you thought you were almost at a point of recovery.
hazel said 'perhaps i can have some tea'
we have to figure out a way to explain my health to her now, its lasted too long and she's getting mad.
two angel doctors came into my life.
dr. jay sandweiss
and dr lu the chinese acupuncture/herbal savant.
dr lu in one meeting broke my fear and helped me help myself turn it into life.
im getting tired of writing.
chemo was fine. i even had fun. matt and melissa and heather to support me.
the benadryl made me high as a kite.
no negative drug reactions.
yesterday and today
nautious
sensitive skin
achey body
tired
FOR alison 5 good things today
my aunt beth is here
hazel's dress has turned into a shirt and her tush is so cute
going outside
taking a nap
macaroni soon?

Thursday, February 7, 2013

now im not sure i can do it.

the update i mean.
matt is in the kitchen making me a bagel after i just cried all over myself post watching the last episode of season two of downton abbey.
i still cant accept this.
will i ever?
maybe its like giving birth to a beautiful child and loving them so deeply and seeing the miracle and thinking, 'i just cant understand this beauty maybe i will later'. . . and you ask a mother with an older child and she says 'no you never do, you never will understand.'
except they cut out my ovaries and my uterus and my eggs were all rotten and i was just getting up the courage to that possibly i could have another child and now i cant ever ever and im a really good momma, i really am.
im really mad. and im really feeling sorry for me.
today we met with dr. liu and asked her an exceedingly large amount of questions. i like her very much. although she cant promise me anything and i wish she could. i wish i had magic powers on that note.
we ended up spending three and a half hours at the hospital in the end, waiting, seeing a chemo scheduling nurse, and getting blood drawn.
oddly enough dr. liu finds much alignment with the mcmullens (the anthroposophical / steiner doctors in town. . .i have an appointment.
we cancelled our therapy per exhaustion and later met with my dear friend jim mcdonald. topics mostly concerning bone broth, supplements and mushrooms, specifically turkey tail.
my chemo is scheduled for the 14th at 8:15 in the morning.
an all day ordeal.
im terrified.
im terrified.
im terrified.
all i can think of is hazel really.
she is growing and changing so fast and i miss our intimate time together.
all i can think of is hazel because i want to be here for her.
she is the most special being in the world.
thank you though.
for all your gifts and cards in the mail, magic potions, mermaids, prayer blankets, juice fairies, food delivered, flowers, beyond kind words and courageous trust.
and time spent.
dearest sister.
selfless husband.
willing parents.
oh and quin. for spooning me the other night even though you do not like to cuddle.
good 'ol girl.

Monday, February 4, 2013

affirmed thoughts from bari.

you're never too old to lie in your father's lap, sob on your mother's shoulder or spoon your sister
i no longer believe everything happens for a reason
the unknown is more terrifying than reality
crying is a sign of strength
hospital food is only a skosh better than airplane food
nurses are selflessly devoted caring beings
my sister's strength, courage, humor and insight displayed the past couple weeks is what has kept me going
it helps to have friends in high places
there is nothing heavier than compassion
the i love lucy show was and still is brilliant
the body is remarkable and knows how to heal itself
a smile from a stranger goes a long long way
lack of control is overwhelming and powerless
my sister is beyond blessed to have the warmest, most generous, uplifting and supporting community of friends
the breath is healing
i love my sister to infinity and wish this was all a bad dream
we don't have the power to make life fair, but we do have the ability to make it joyful
one must turn on the dryer if the goal is to dry ones clothes
hope is faith
my parents are magical
it's impossible to OD on "I Love You's"
cancer sucks
there is nowhere in the world i'd rather be right now than with my sister
silver ponies and stickers make everything better
LOVE SISTER B

juice.

Today Caryn wakes up next to the fire which is burning slowly and Matt puts on his boots to fill it back up with woood. Woooosh, the orange flames are beautiful through the glass.
Caryn's momma "bubbie" arrives and we're reading a story to Hazel while watching the boy cardinals And the girl cardinals out the window.
We are drinking juice to fill the body with nutrients and take it easy on the digestive system for breakfast (a few nibblets of buckwheat sunflower cake). We're gonna make juice a regular part of the routine, oh and get some kefir cultures and a bunch of coconuts to make a brew of young coconut kefir drink, antibacterial and fungal and full of probiotics and electrolytes.
All sorts of support is coming from the community to help, and at this point the best we can think of is small gifts of fresh organic produce for juicing and Kefir-ing.
We're on the lookout for:
Celery, Cucumber, Bok Choy!, Kale, Collards, Chard, Cilantro, Radishes, Aloe, Parsley and Bitter greens (dandelion, frisee, escarole, chicory), Turmeric root, Carrots, Ginger, Wheatgrass.
Green Apple, Frozen Red Raspberries, Blackberries, Blueberries, Cranberries, Lemon, Lime (no other fruits please)
Young Fresh Coconuts! (get by case at Hua Xing, asian market on Washtenaw)
Maitake, Shiitake, Enokitake, King Oyster.
Love love love!
We're excited to bang coconuts open with a hammer after making a sweet drill hole to empty the juice for culturing.
You can drop goodies off in the cooler in the mudroom (through the gate on side of house) at 2234 North Territorial.
A million thanks, friendly friends and family.
Britten and Evan (neighbor buddies)

Sunday, February 3, 2013

upon departure.

february third 2013
(to the nurses of 8b)
my mother baked cookies because she is a loving jewish mama and she wanted to say thank you on behalf of our family for all of the confident and kind care you have given me in the past twelve days.
i feel uneasy this morning. of course i would rather be in my own home yet in such a short yet long time this floor has become my home. someone has always been close to help me. i want to leave AND i am fearful of what comes next. this place: a place of my oddly shaped rectangular walking block, of heprin bruised arms and tortured bowels, hazel placed rainbow stickers and tears and tears and tears.
thank you for your smiles
your looks in my eyes
and our moments of laughter
i will forever be grateful
blessings.
caryn simon




Saturday, February 2, 2013

eating it all up.

A lot of progress this weekend so far!
Caryn is unhooked from her IV, because she's drinking normally. She can eat solid foods! Ronnie is making her spaghetti with tomato sauce. And she's eating tapioca pudding and applesauce and crackers and mashed potatoes. Nausea is much better, and is staying away as long as she's reasonable in what she eats.
The best news is that she may be able to go home tomorrow morning. I'm so excited, and so is Hazel. The doctor said she can go up and down stairs as long as it feels OK. She just can't do any heavy lifting.
Caryn says she'll post something again soon.
-matt

Thursday, January 31, 2013

biopsy results.

The news is better than it seems at first. The story has a good ending.
Caryn was awakened this morning with a very poor partial delivery of her final biopsy results. Dr. Liu was not with the team on their rounds, and after examining her to see how she was healing, one of the other doctors said as he was walking out the door "Oh, the results were as we expected, it's stage 3". And then walked out the door. So everyone was rather frustrated and angry, since we didn't get to ask any questions, and it seemed like bad news on the surface, since we were hoping it was stage 2, and not in the lymph nodes.
So we had Dr. Liu paged, and she said that she would be by this afternoon and answer our questions. So she says that yes, they determined it is stage 3b. But the lymph nodes they biopsied showed no signs of cancer, and we thought that was what they would use to determine stage 2 vs. 3. Turns out there was a very tiny tumor on the omentum where it was probably touching one of the ovaries. That's the layer of fat underneath the stomach that they removed. So the only place there were tumors were ovaries, uterus, and omentum, all of which were removed. So, they got all of the tumors and there is only microscopic cancer remaining. All of the biopsies they took around her pelvis and abdomen came back negative. There is no cancer in her lymph system.
So, the news is as good as to be expected. It seems the tumors were very contained and localized.
We got a little more information on the chemo, which they hope to start 2 weeks after she comes home from the hospital. But we're focusing on recovery from surgery and getting her feeling better and home right now.
Caryn was very upset after the doctor visit this morning, but is feeling a little better after talking to Dr. Liu. She's been pretty nauseous today, but got the go ahead to eat crackers and clear liquids. She's had about 4 or 5 crackers.
Dr. Rebecca Liu is really wonderful by the way. She gets the thumbs up.
-matt

chicken broth.

Today Caryn, in a lighthearted spirit, asked for stickers. When the surgical team made their rounds, they gave her some long awaited responses to questions. Like can I start some liquid food? "Yes". Do I really need another trip to x-ray? "No". Can I take acidophilus? "Yes". So gleeful was Caryn at the answers, she had everyone on the team line up so she could paste rainbow stickers on each. Quite a site. They don't get this from any other patient! A watermelon lolly pop and two spoons of chicken broth were like heaven.
Hazel's visit was a bright spot today. She was sitting in Caryn's bed, stamping little kitty and flower designs on paper, as well as on hands and almost on the blanket. (Time to change activities). Caryn took a long walk down the hall with Hazel, Bari and Ronnie. Hazel was marching and at one point looked back and said, "Mama, you're not marching!" Caryn picked up her pace. All the while, Hazel was pasting stickers on things and people. Smiles from all corners. The funniest part of Hazel's visit was when we were getting ready to change her diaper. We jokingly said that we should call Caryn's nursing assistant to help. Well, Hazel pushed the call button! We cancelled in a hurry, but told Amy when she walked by. She said we'd have to do that one ourselves!
The evening still holds two more rounds of walking the floor, a shower and painting her toenails yellow! Yellow is to give strength to her third chakra. We are all pleased at the little signs of progress that are finally happening. Right now we want her to get her strength back so we can go home and continue healing from there. We know all your prayers, wishes, thoughts are helping and supporting Caryn and the family.
The Simon Family
this has nothing to do with Caryn's condition:-)
http://www.fart-sounds.net/fart_sound_board.htm

Wednesday, January 30, 2013

getting better.

Caryn is feeling a little better today. She slept well last night, her pain is down, and they say she might be able to have liquids later today!
She had two Hazel visits yesterday.
That's it for now.
-matt

notes from caryn.

i am touched with a resurgence of love for my husband after reading this last entry. matt, i'm sorry i sometimes need things that aren't natural for you to give. you're paying attention to me and i can tell that you love me.

i have no idea what day it is. i do know that my surgery was scheduled for the 23rd which was a wed and i was suppose to stop eating at noon the day before. it's pretty much been a blur since then.

(this is suppose to be funny) i think i'm still hallucinating even though i'm no longer taking morphine. i know this because i keep opening my eyes to a room full of doctors starring at me and all that's coming out of my mouth is incoherent babble.

and that salve jar thingy was way more funny than matt made it sound. my sister literally held the jar salve out to me, i put my finder in it and then fell asleep.
there are lots of tiny little poop joke moments that are funny or when i'm in a space where my body isn't that uncomfortable i can laugh a little bit. but the reality of what is really going on here is so foreign to me i can't make sense of it.

i have heprin bruises all over the backs of my arms that are dark purple. my surgical incision is insanely painful. it's unfamiliar for me to be physically weak. to me mentally weak is something i understand and that's different.
its really scary to not know enough about what's going on around you to advocate for yourself and do the things you would normally do to help yourself heal.

i'm happy this hospital was here to take the cancer out of my body. but didn't expect to be left with sleepy bowels, bladder and an UTI.

i'm really sad that kate ulllman dropped off home made crackers for me and i can't eat them. i had to watch hazel eat one today. and what about all these delicious broths and juices we had planned jenna?
i'm scared a lot. i feel like i have so much ahead of me and i really thought i'd been through enough for awhile. i still don't understand why this is happening to me. and i have this little girl and she feels like all that matters and i can't be with her. and when i have chemo i definitely can't be with her. i want to live long enough to be a part of her life. i could cry at any moment if i keep thinking about it so i try not to think about it.

i can really feel that there's a lot of love out there for me. keep it shinning i can feel it. it's helping to hold me up.

ps. i want my sister to sleep with me every night.

Monday, January 28, 2013

GI tract gets a makeover.


Caryn has had a bunch of doctors looking at her bowels today! We've got some new ideas on the gas issue from some specialists, and hopefully it will get moving over the next couple days. More walking, more sitting, less morphine, more enemas, a new laying position and possibly some other things if it doesn't resolve. But still agreement that food will not help at all. Nothing by mouth.
She's had a couple of visits, and her mood has been up and down. The discomfort is kind of bad, and she's felt a little hopeless at points, but there's also been periods where she was resting comfortably and more alert, making little jokes, that kind of stuff.
She says the funniest thing that has happened was when Bari held out the salve for her to put on her lips, and Caryn fell asleep with her finger in the jar. Bari had to wake her up to finish.
I think the funniest thing was when she handed me a half-sucked luden's lozenge at 11AM and said she didn't want it anymore. I said "Where did that come from?" and she didn't know, but I found out later that the last time she was given one was when Bari gave her one around 6AM. 5 hours in the mouth!
-matt

Sunday, January 27, 2013

more gas.

Apparently gas and distention are very common after abdominal surgery. We're trying to get her up and walk as much as possible, which is supposed to help. She's actually more alert and walking better and farther than before, but she's in quite a bit of discomfort because of the gas. And they're not letting her have anything by mouth at all until her bowels wake up.
So pray for toots.
-matt

Saturday, January 26, 2013

gassy

Caryn was a little bloated this morning, so Dr. Liu gave her some stuff to help with that and said she still can't eat anything! But she was able to have a little juice. Hopefully we'll get some food in her soon. An even longer walk this morning, and she is a little more alert. Still has trouble keeping her eyes open.
I've been sleeping at home with Hazel each night while Ronnie and Bari rotate staying at the hospital, and with Stu, Sarah, and my parents in town for the weekend, we've got really good family coverage right now.
Hazel came by for a little visit this morning. She's been a champ, but she let me know this morning that she really wants mama to come home soon.
Doctor hasn't said anything about going home yet, so we'll probably be here another couple days I'm guessing.
-matt

Friday, January 25, 2013

much more alert.

Caryn's port was successfully installed, albeit much later than it was supposed to be. Hospital time! She is back in her room now, and she's had the go ahead to eat liquids and drink as much as she wants, although she only feels like drinking water.
She made her first phone call tonight, to talk to Hazel on the phone, and she is in pretty good spirits and able to hold a conversation.
She told me to say something else, but now I forgot what it is.
-matt

today.

Caryn is much more alert today. She has less pain, is talking more, and walked a lot farther than yesterday. Still not feeling like having any visitors though. Going downstairs to get a port installed soon, looking forward to having that done because Dr. Liu said she could start having fun things after that, like as much water as she wants and tea and maybe some broth. We'll just go slow on that to make sure she can handle it.
Thanks for the flowers, cards, food, and offers of help. We appreciate them all.
-matt

Thursday, January 24, 2013

recovering.

Caryn slept most of the morning. She looks a lot better now than she did last night, and is much more alert now, although she keeps drifting off. Dr. Liu stopped by and said everything looked well. Reduced the morphine dose to help her wake up a little, said to keep getting up and walking around, and she probably won't be able to eat broth until tomorrow. Just ice chips right now.
Caryn's sense of humor remains intact. She told us we were mean for getting her up and making her walk, that it 'sucked balls'. I asked her if she had any message for everyone and she said 'ow owee owee ow owee'.
We can feel the energy out there and appreciate it.
-matt

Wednesday, January 23, 2013

post surgery.

Caryn went through surgery just fine. She had a great team and they took really good care of her. I have not seen her yet, but she is in the recovery room and awake. We spoke to Dr. Liu afterwards, and they did take out her ovaries, uterus, and omentum. There were some small tumors on the back of the uterus, but they could not see any anywhere else. They took swabs all over the place a few lymph nodes. They'll have to biopsy everything before we have final results. The only thing we know for certain right now is that it is ovarian cancer, it's either stage 2c or 3c, and she will need chemo. Full recommendations will come in a week.
Right now we are focused on loving and healing our sweet friend and the best mama in the world from her surgery. One step at a time.
Thank you so much for your love and prayers today. We'll still be needing them over the next few months, and we'll be asking a lot of our friends in the days to come.
Love you all.
-matt

surgery time.

Caryn is getting prepped for surgery right now, it's looking like the surgery will happen at 3pm. We've taken over a section of the family waiting area and are all wearing heart stickers to show we're on Caryn's team.
Sarah

Tuesday, January 22, 2013

surgery time changed.

Surgery will be at 2 PM on Wednesday.
Please send healing light, body strength, trust & faith with your prayers for Caryn during her surgery.
-matt

surgery scheduled.

We've heard that Caryn's surgery will be at 12:47 PM. We will arrive at 10:30 and get prepped. Surgery should take 1.5-3 hours. Please keep her in your thoughts and prayers during the surgery. I will attempt to post if the time changes at all.
-matt

Monday, January 21, 2013

cold.

The whole family has come down with a cold. Caryn's sleeping it off today. Resting at home by the woodstove.
-matt

Thursday, January 17, 2013

beginnings.

Here's what we know so far:
Caryn had been having some bloating and abdominal discomfort, and went to the doctor on Monday. She scheduled an ultrasound, and we found out that she had a large mass on her ovaries. Since then, we've been to see Dr. Rebecca Liu at UofM, who told us that they both need to come out. Surgery is scheduled for Wednesday, and we will find out more after that. Like I said, they will start by removing both ovaries, which will be sent off for biopsy while Caryn is still on the table. If the mass is benign, then nothing else will need to be done. The doctor is fairly concerned about it because of the fluid that is in Caryn's abdomen and her family history of ovarian cancer. If it's cancer, they may remove all or portions of her uterus, lymph nodes in the area, and the omentum, which is a layer of fat underneath the stomach. All these are possible locations for tumors to spread from the ovaries. After surgery, they will also assign a stage (1-4). Right now, they don't know much about it. The doctor said she feels like it's most likely stage 1 or 2 based on the ultrasound and a physical exam. We'll know the results of the surgery immediately afterwards, but the final recommendations for treatment (chemo, etc.) will not be available for a few days. All the tests need to come back, and a board of physicians will look at the results to make any further recommendations for treatment.
Caryn will be in the hospital for 3-5 days, and then home recovering. Any followup treatment will begin 2-8 weeks after surgery, depending on what is found. We ask for your prayers and thoughts of hope at this time. Jessica Lieberman is organizing a meal schedule for once we're home, please contact her if you'd like to get on the list.
Caryn would like you all to know that she is looking forward to her pants fitting properly again soon, it was really freaking her out.
I'll try and post updates when we know any more.
-matt